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DOWNSYNDROME

DOWNSYNDROME
  • National Down syndrome Society (NDSS) - To empower individuals with Down syndrome and their families by driving policy change, providing resources, engaging with local communities, and shifting public perceptions. 
  • Trisomy 18 Foundation - Our mission is to provide a caring, supportive worldwide community for families impacted by Trisomy 18 syndrome and related disorders, to advocate for compassionate, supportive care, and to fund research that seeks to reduce or eliminate life-threatening and quality of life challenges facing patients with Trisomy 18. 
  • Gigis Playhouse - To change the way the world views Down syndrome and to send a global message of acceptance for all. 
  • Adam’s Camp - Since that first session in 1986, Adam’s Camp has met or exceeded the expectations of thousands of individuals with special needs as well as their family members from across the country and beyond. Adam’s Camp continues to build and maintain this community by paying special attention to the needs of our campers and families, and in return has received an overwhelmingly positive response. 
  • F.R.I.E.N.D.S - The Arc - The Arc promotes and protects the human rights of people with intellectual and developmental disabilities and actively supports their full inclusion and participation in the community throughout their lifetimes. 
  • MY DOWN SYNDROME COMMUNITY (MYDSC) - Developed by the Lumind IDSC Foundation, this free online library includes a comprehensive directory of evidence-based resources and useful tools for individuals with Down syndrome and their families. 
  • DOWN SYNDROME-AUTISM CONNECTION - National nonprofit organization whose mission is to provide education and support to individuals facing the unique challenges caused by co-occurring Down syndrome and autism spectrum disorder (DS-ASD). 
  • Tierra Del Sol Foundation -  We champion inclusion and value for all people with disabilities through creative pathways to employment, education, and the arts. 
  • Lamb Foundation - The LAMB Foundation of NC is a public 501(c)3 not-for-profit charity dedicated solely to assisting people who have intellectual disabilities within the state of North Carolina. Our organization is composed entirely of volunteers. As a result, 93% of the funds we raise directly goes to programs that support people with intellectual disabilities. 
  • DOWN SYNDROME AFFILIATES IN ACTION (DSAIA) - National trade association, composed primarily of local Down syndrome organizations across the U.S., committed to serving affiliates through collaboration, resource sharing, and networking.  The Down Syndrome Guild of Dallas is a proud member of DSAIA. 
  • DOWN SYNDROME DIAGNOSIS NETWORK (DSDN) - The mission of DSDN is to connect, support, and provide accurate information for families with a Down syndrome diagnosis.  DSDN provides multiple online membership groups and annual retreats for families. 
  • Reeces Rainbow - Reece’s Rainbow advocates and finds families for orphans internationally with Down syndrome and other special needs by raising funds for adoption grants and promoting awareness through an online community, media communications, and other events. 
  • Down Syndrome International Star Institute - To impact quality of life by developing and promoting best practices for sensory health and wellness through treatment, education, and research. 
  • Path International - PATH Intl., a federally registered 501(c)3, leads the advancement of professional equine-assisted services by supporting our members and stakeholders through rigorously developed standards, credentialing and education.  
  • Act4Me - Our mission is to provide funding to children with neurological and/or genetic disorders for vital therapies, allowing them to reach their highest potential. To meet that end, Act4Me offers two types of grants: Therapy Grant &  Equipment or Home Therapy Supplies Grant 
  • BLACK DOWN SYNDROME ASSOCIATION (BDSA) - The mission of BDSA is to connect Black families in the Down Syndrome community with resources to improve their lives in a more meaningful way by addressing the many inequalities present that increase barriers to access, support, and education. 
  • JEROME LEJEUNE FOUNDATION - International organization focused on three core pillars of expertise — research, care, and advocacy. 
  • Grace Signs - To build awareness about the abilities of children with special needs, by creating educational software applications that teach reading and Sign Language through story, music and video. 
  • By Their Side -  By Their Side's mission is to provide personal advocacy, supporting the needs and interests of Marylanders with intellectual and/or developmental disabilities now or when parents are no longer able to do so. 
  • Friends Connect Foundation - Friends Connect Foundation facilitates free socials where teens, both with and without special needs, can connect and spend time together! 
  • INTERNATIONAL MOSAIC DOWN SYNDROME ASSOCIATION - Provides support, information and research to any family, individual or professional whose life has been affected by mosaic Down syndrome. 
  • HOPE STORY - Gives support, encouragement and hope to parents whose child has received a Down syndrome diagnosis; provides free resources to the medical community to help doctors deliver a Down syndrome diagnosis, and helps parents of children born with Down syndrome use their story to bring hope to others. 

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